The right to know—and not know
Purpose, incidental findings and the option to decline information should be clear before testing.
GENOME ETHICS
Genetic knowledge can help—and also create anxiety, family conflict, discrimination or false certainty. Those consequences are part of product quality.
Purpose, incidental findings and the option to decline information should be clear before testing.
One person’s result can reveal probabilities about biological relatives who never consented.
Ancestry, risk, traits or research associations must not become labels for personality.
Predictive testing without present medical benefit can remove a child’s future autonomous choice.
A genome is unique and familial. Even pseudonymised data need enhanced protection.
Genetic data must not default into advertising, profiling, insurance, employment or model training.
IS NOT SCANNED BY ONE GENE
Modern studies find many variants with tiny group-level effects. They cannot reliably describe an individual’s personality—from DRD4 or any other single marker.
Large personality-trait GWAS ↗