GENOME ETHICS

DNA belongs to one person. But it speaks about many.

Genetic knowledge can help—and also create anxiety, family conflict, discrimination or false certainty. Those consequences are part of product quality.

01

The right to know—and not know

Purpose, incidental findings and the option to decline information should be clear before testing.

02

A genome is familial

One person’s result can reveal probabilities about biological relatives who never consented.

03

Probability is not identity

Ancestry, risk, traits or research associations must not become labels for personality.

04

Children are not small adults

Predictive testing without present medical benefit can remove a child’s future autonomous choice.

05

We do not promise anonymity

A genome is unique and familial. Even pseudonymised data need enhanced protection.

06

No hidden monetisation

Genetic data must not default into advertising, profiling, insurance, employment or model training.

PERSONALITY

IS NOT SCANNED BY ONE GENE

There is no ‘personality gene’.

Modern studies find many variants with tiny group-level effects. They cannot reliably describe an individual’s personality—from DRD4 or any other single marker.

Large personality-trait GWAS

International frameworks

GA4GH Framework ↗UNESCO Declaration ↗WHO genomic data principles ↗